HAEA in Action

Nov

November 2019 Newsletter
Topics include: Capitol Hill, Day, Congresswoman Eddie Bernice Johnson, #Families4HAE Fundraising Campaign, #BeyondHAE Challenge for Youth Advocacy Month, #BeyondHAE Podcast, November Health Team Focus, Nico's Lunchbox, Advance HAE Mobile App, Current Clinical Trial, HAEA Spotlight, Upcoming HAE IN-MOTION® Fundraising / Events, and Upcoming Webinars


Oct

October 2019 Newsletter
Topics include: Youth Advocacy #BeyondHAE, #Families4HAE Fundraising Campaign, October Health Team Focus, Legislative Update, 2020 HAE Global Conference, Advance HAE Mobile App, Current Clinical Trial, Nico's Lunchbox Pre-order, Pam King HAEA Scholarship Program, Brady Club Fall Activity Book, HAEA Spotlight, Upcoming HAE IN-MOTION® Events, Upcoming Webinars, and Golf in Miami


Sep

September 2019 Newsletter
Topics include: Fall Health Team Focus, International Conference Announcement, Advance HAE Mobile App, Clinical Trials, Patient Survey, Children's Book, Youth Advocacy Month, Pam King HAEA Scholarship Program, Brady Club Fall Activity Book, HAEA Spotlight, Upcoming HAE IN-MOTION® Events, and Upcoming Webinars


Aug

August 2019 Newsletter
Topics include: Remembering Dr. Michael M. Frank, National Patient Summit and Survey, Youth Programs Announcements, Chris Whalen HAEA Compassion Fund, Back to School, HAEA Spotlight, The Scientific Registry, Chronic Disease Day, Legislative Updates, Upcoming HAE IN-MOTION® 5K Races, Upcoming Back to School Webinar


Jul

July 2019 Newsletter
Topics include: Symposium with Health Insurers, Summit Registration Reminder, Congratulations to Avi Gupta, Summer Health Tips, Spotlight on Noah, Scientific Registry Update, Brady Club Activity Book, HAEA Youth Instagram, July 28th 5K in Atlanta, HAEA Headliners and Webinars


Jun

June 2019 Newsletter
Topics include: HAE Day :-), E.R. Toolkits, Summit Registration Deadline, Exploring Global HAE Research, Summer Health Tips, HAEA Spotlight, Participation in the Scientific Registry, Brady Club, HAEA Youth Instagram, Legislative Update, Upcoming 5K Races, HAEA Headliners, Upcoming Webinar.


May

May 2019 Newsletter
Topics include: A Message from the President, HAE Day :-), Invitation to Physicians to Attend The Summit, Announcing the Spanish Version of Our Web Site, Congratulations to Pam King Scholarship Recipients, Brady Club Activity Books, Youth Webinars, Legislative Update, Scientific Registry Update, FDA Conference Update, HAE Health Tips, Virtual Walk/Run Registration Reminder, Upcoming Events, Recent Successful Past Events, Upcoming Webinars, and "Meet & Greets".


Apr

April 2019 Newsletter
Topics include: Wide-Ranging Support & Research, Seven Effective Treatments in Ten Years, Summit Professional Scientific Track, Pam King Scholarship Program, Brady Club Activity Book, Summit Youth Programs, Spring Health Tips, 2019 HAE Day, Recent Successful Past Events, Upcoming Events, Webinars, and "Meet & Greets".


Mar

March 2019 Newsletter
Topics include: HAE Research, Pam King Scholarship Program, Brady Club Activity Book, Youth Leadership Council, Health Tips, Scientific Registry, Virtual Walk/Run, "Swell" Photos, Action Alert, and Upcoming Events.


Feb

February 2019 Newsletter
Topics include: HAE Research, Summit Conference Grants, Global Summer Youth Advocacy Program, Pam King Fall 2019 Scholarship Program, A Reminder to Reach Out to Congress, Brady Club, Youth Leadership Council, Navigating Insurance Issues, Upcoming Advocacy Webinar, HAE Day Virtual Walk/Run, "Swell" Photos, and Upcoming Events.


Jan

January 2019 Newsletter
Topics include: HAEA 20th Anniversary, Announcing Our New Look, Summit 2019 Registration Announcement, New Year's Resolutions, Brady Club News, Scholarship Announcement, Youth Leadership Council, Scientific Registry Quarterly Report, HAEA Membership Survey, Los Angeles and San Francisco Events, and Upcoming Webinars.


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